美国纽约市- 2019年11月20日:患有神经纤维瘤的Brianna Worden在纽约市的一个街角摆姿势拍照。一个左半边全是肿瘤的女孩，靠着一种难以置信的坚韧精神度过了一些难以置信的困难时期。来自纽约州北部的Brianna Worden在两个月大的时候被诊断出患有神经纤维瘤(NF) 1型，这意味着她从脖子以下的整个左侧都被肿瘤覆盖——里里外外都是。这位22岁的歌手喜欢唱歌，她一生中已经经历了10次手术，8岁时不得不重新学会走路，甚至在一次特别困难的手术后又重新学会说话。布里安娜告诉巴克罗夫特电视台:“这只是我每天面对的一场战斗。我童年的大部分时间都是在医院度过的，就像电影里的孩子看着窗外，看着其他人玩得很开心一样。”妈妈乔安娜·沃尔特说:“布里安娜的性格就像阳光。她不会让挑战挡住她的路。在她人生的不同时期，很多医生都跟我说过，“如果她能活到7岁就算幸运了”或者“如果她能活到15岁就算幸运了”。她是一个斗士，她很了不起，我们真的很高兴她仍然和我们在一起。” In her teens, Brianna entered beauty pageants, eventually winning Miss Teen New York in 2013. Her NF is most visible on her left arm, where she has had three 'debulking' operations to reduce the tumours' mass. Unfortunately, each time the doctors removed the three pounds of tumour necessary, it has grown back. Now, the skin on her arm has become incredibly thin, making further surgery impossible. She is currently using a clinical trial drug alongside chemotherapy to try to shrink her tumours, while continuing to do advocacy work and fighting to show she is not defined by her condition. PHOTOGRAPH BY Marcus Cooper / Barcroft Media - NOTE: This Photo Can Only Be Used Within Context With The Informati
